Thursday, 18 March 2010

Tired

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I had a check up at the hospital today, for the endometriosis.

The plus side - everyone at the clinic is fantastic. It's more like visiting friends who also do medical examinations than going for a check up.
The down side - things aren't quite what they should be and the specialist wants me back for a full ultrasound. I have lumps and bumps in strange places. It might just be normal, for me, or they might be new lumps and bumps. They need to be safe and check.

You see, I have what they call a frozen pelvis. All my internal organs are stuck together and stuck to my abdominal walls, etc. Nothing is where it should be, things didn't get stuck together in any nice tidy order. It's a big chunk of lumps and bumps, so trying to look clearly at anything in there? Not easy.

The thing that has me the grumpiest is that this stupid illness, with fibromyalgia slapped on top, leaves me completely drained of energy. I can get up feeling fine and be hit by a wave of tired that feels almost like your drugged. Being home I can hide out on my bed when I get really useless, but I wonder what other people with chrnoc fatifue* symptoms do when they have to hold down jobs or raise children... my mind boggles!

To give you an idea how the tiredness affedts everything I've left my typos in this post. On a good day I make very few typing errors - on a tired day I'm like another language! I even talk backwards. IT's funny, but it also makes you fed up and frustrated when you just want to get to the point... or remengber what the point was.

* that was a typo for chronic fatigue.
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8 comments:

  1. Sorry to hear you are feeling so bad. I've been through the endometriosis bit and know you must be in a miserable amount of pain. I hope the medical folks can get that sorted quickly so you can feel better soon.

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  2. Hi Elizabeth

    Yeah, I've been the queen of grump lately. Finding out I have to go back AGAIN for an ultrasound AGAIN was just too much today. I felt decidely rant-y.

    I'm sorry to hear you have endo issues too. It's quite alarming how many women do.

    Thanks for the kind wishes. They made my grumpy moment feel less "tantrum" and more sharing. :-)

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  3. Michelle, I am so sorry to hear you aren't feeling well and have to have more tests done. I don't have endometriosis, but I have been diagnosed with fibromyalgia. Some days are really a struggle. Hope you will be feeling better soon.

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  4. Daisy
    You too? Take a ((hug)). When the doc first told me I thought, "Hah! I'm not letting this get to me or change my life!" ...but I was wrong. It does. :-\

    On a spiritual note - it's taught me a lot. It's taught me that taking care of myself isn't being selfish and saying "no, I can't do this today" is not a bad thing.

    You ever want to moan, talk or just feel like someone else understands... you have my email.

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  5. Thank you, Michelle. Some days are good and some days are really not good, but I just take them one at a time and get through the bad ones somehow. Walking or other gentle exercise helps, but if I do too much then it is worse than if I had done nothing at all. It is a fine line and it is hard to know where it is sometimes. Hugs to you too! :)

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  6. I know what you mean about the exercise. We have this walking machine - my dad actually bought it for my mom a few years back. Anyway... two years ago I used to do about 40 minutes on it easy. So a month or two back I pop on some nice music and start walking. I was really enjoying it. I walked about 15 minutes... and felt like I was dying that night! I mean every joint hurt. :-x
    I swear I could even feel each bone in my feet, hands, ribs... I'm still learning the new balance of how much is too much.

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  7. Oh no...sorry to hear about this. I never knew it was that tough for you...HUGE HUGS! You'll be in my prayers!

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  8. (((Amel)))

    thank you, dear friend. :-)

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